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Talking About Fear and Love
February 21, 2021
“Then I get a call back a couple of minutes later, and he said, ‘Sorry, I was wrong. You have the curable type, but you do have to go through chemo and radiation.'”
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Mesothelioma Hub added to resources page
April 9, 2020
Morgan Barnhardt of Mesothelioma Hub wrote me an email asking to include her organization on Roads We’ve Travelled. Here’s a quote from her email: “2,000-3,000 individuals die every year due to mesothelioma, with symptoms not appearing until 20-40 years after exposure to asbestos. The scariest time for most families is directly after diagnosis. Therefore, we […]
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RehabCenter.net added to resources page
January 27, 2019
I’ve been foortunate enough to be approached by some incredible charities and nonprofits, asking me to add them to my resources page. Instead of just adding a resource to the page, I’ve asked for people to write a little bit about their organization and who they serve. Our latest resource is RehabCenter.net — an online […]
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Notes from the Road: My Health Insurance by the Numbers
May 21, 2017
Numbers With the passage of health care reform in the House and all it could entail, I began going through my insurance records from 2012-2014, when my acute lymphoblastic leukemia was at its worst. And I found a number I’d like to share with you. That number is: 746,686. That number represents the combined cost […]
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Ordinary Heroes: Boston Cancer Support, Part II
April 25, 2017
BOSTON – When Susan Chaityn Lebovits and Beth Freeman teamed up to form the non-profit Boston Cancer Support (BCS), they wanted to identify and address some of the most pressing needs of cancer patients, their families, and the clinicians who work with them. To do this, BCS holds Cancer Collaborative workshops across the state three […]
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Ordinary Heroes: Boston Cancer Support
April 12, 2017
BOSTON – Imagine that you’re sitting in your doctor’s office. You’re not sure what exactly what’s happening but you do know something is very wrong. Maybe you’re constantly weak or exhausted, maybe you’re in severe pain, or maybe you’re covered in bruises that you don’t remember getting. And then, your doctor comes in and he’s […]
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Notes from the Road: Blood Brothers
March 16, 2017
Bloodwork to Blood Brothers
On Wednesday, August 1st 2012 I learned I had two blood brothers in the truest medical sense. It was the usual hot and muggy New England summer day. My father came to get me in Littleton and drove me to Lahey Hospital for the next part of my Chemotherapy treatment: Lumbar punctures -- spinal shots to deliver medicine to my brain to keep the Leukemia from spreading there. I reported immediately to the blood lab. There they would draw a sample of my blood to make sure it would clot before they went ahead and stuck a needle in my back. Read More